To become a leader in providing services and resources to people with rare genetic illnesses.
To assist families with children who have the rare condition known as Xeroderma Pigmentosum or other rare skin diseases attain needed medical treatment, social services, personal protective equipment, and education regarding their condition.
New England XP
and Help to Fight
Donations to support Xeroderma Pigmentosum (XP) research and care are greatly appreciated. XP is a rare genetic disorder that affects the skin and eyes, making them highly sensitive to ultraviolet radiation and leading to an increased risk of skin cancer. By donating, you can help fund research to find treatments and cures for XP. You can also support the development of resources to help individuals and families who are affected by XP. Your donation will make a difference in the fight against this rare and debilitating disorder. Thank you for your generous support.