Medical Programs
Coordinate expert consultations with healthcare providers for the optimal care of patients with Xeroderma Pigmentosum (XP) in Latin America, including South American and Caribbean countries (Review cases and therapeutic discussions through virtual visits with the United States Interdisciplinary Medical Expert Team from multiple specialties).
Coordinate travel to Latin America, including South American and Caribbean countries, to educate communities about Xeroderma Pigmentosum and the care of patients with this condition and assist in evaluating and treating local XP patients.
Coordinate the conduction of clinical studies and trials in the USA and Latin American communities, including South American and Caribbean communities, to further improve cancer care for Xeroderma Pigmentosum patients, ultimately preventing skin cancers in XP patients.
Collaborate in the comprehensive evaluation of XP patients at Massachusetts General Hospital (MGH) and Massachusetts Eye and Ear Hospital (MEE) in collaboration with the National Institutes of Health (NIH).
Donate to
New England XP
and Help to Fight
Xeroderma Pigmentosum!
Donations to support Xeroderma Pigmentosum (XP) research and care are greatly appreciated. XP is a rare genetic disorder affecting the skin and eyes, making them highly sensitive to ultraviolet radiation and increasing the risk of skin cancer. By donating, you can help fund research to find treatments and cures for XP. You can also support the development of resources to help individuals and families affected by XP. Your donation will make a difference in the fight against this rare and debilitating disorder. Thank you for your generous support.