Provide expert consultation to providers in DR and PR for the optimal care of XP patients.
Travel to DR, PR and Latin America to educate the communities about this condition and the care for XP patients and assist in the evaluation and the treatment of the local XP patients
Participate in clinical studies and trials in the USA, DR, and PR to further improve cancer care for XP patients with an ultimate goal of preventing skin cancers in XP.
A comprehensive evaluation of XP families at Massachusetts General Hospital and Massachusetts Eye and Ear Hospital in collaboration with the National Institute of Health
New England XP
and Help to Fight
Donations to support Xeroderma Pigmentosum (XP) research and care are greatly appreciated. XP is a rare genetic disorder that affects the skin and eyes, making them highly sensitive to ultraviolet radiation and leading to an increased risk of skin cancer. By donating, you can help fund research to find treatments and cures for XP. You can also support the development of resources to help individuals and families who are affected by XP. Your donation will make a difference in the fight against this rare and debilitating disorder. Thank you for your generous support.
Get in Touch
New England XP, Inc.
PO BOX 1754
LAWRENCE, MA 01840-9998